Consumers as researchers – innovative experiences in UK National Health Service Research

Consumer involvement is an established priority in UK health‐ and social‐care service development and research. To date, little has been published describing the process of consumer involvement and assessing ‘consumers’ contributions to research. This paper provides a practical account of the effective incorporation of consumers into a research team, and outlines the extent to which they can enhance the research cycle; from project development and conduct, through data analysis and interpretation, to dissemination. Salient points are illustrated using the example of their collaboration in a research project. Of particular note were consumers' contributions to the development of an ethically enhanced, more robust project design, and enriched data interpretation, which may not have resulted had consumers not been an integral part of the research team.     

Mutual development : Towards new criteria and indicators

The processes of globalization driving restructuring in all countries are harbingers of a new dialogue about paths to development. This development will not be based on the old model of macroeconomic management, but on a broader, systemic view beyond economics—Mutual Development. This article examines a range of social indicators, quality-of-life indicators, and new forms of regional and national accounting, and their applicability in the planning and implementation of Mutual Development based on precepts of grassroots action, cultural diversity, and global sustainability.     

No easy solutions: lessons learned from an intervention to reduce clinic non‐attendance rates in a Scottish hospital

Hospital waiting lists and times have become the public measure of government success or failure. This research examined existing hospital outpatient capacity and considered the age‐old problem of patients who fail to attend their appointment. A reduction in did‐not‐attend (DNA) rates would maximize utilization of capacity, ensure early diagnosis and drive down waiting times. The research was designed to determine whether the introduction of outpatient letters, which included the need for positive confirmation of attendance, decreased the incidence of patient non‐attendance. Utilizing an experimental design, data gathered at two Plastic Surgery clinics were compared over two three‐month periods, pre‐ and post‐implementation. Total attendance and non‐attendance were examined in terms of new and review patients, gender and age profile. The research concludes that the intervention tested in this form can now be discounted thus allowing the exploration of subtler solutions.     

The changing corporate-social contract in the 1980s: Creative opportunities for consumer affairs professionals

In an address to members of the Society of Consumer Affairs Professionals, Hazel Henderson congratulated them on their stated purpose: “to foster the integrity of business in its dealings with consumers,” but added the whether they can also simultaneously “promote harmonious relationships between business, government and consumers” is another matter—one for honest differences of opinion.     

Decision making in the solar age: Ecological criteria for the post-economic era

Note to industrial societies: traditional value systems worked in an Age of Petroleum but that age is ending. What changes do we need to make for the new Solar Age?     

The issue of translation during thematic analysis in a tourism research context

This research note discusses issues with translation of non-English text during qualitative analysis in tourism research using examples from the newly emergent phenomenon of Chinese working holidaymakers in New Zealand. In particular, this note highlights an additional translation step in the thematic analysis process with non-English interview quotes and excerpts. This note argues the merit of researchers’ dual role as researcher/translator and discusses how researchers can undertake translation in cross-language research to maintain the rigour of qualitative tourism research.     

Mapping EORTC-QLQ-C30 to EQ-5D-3L in patients with colorectal cancer

Aims: The primary aim of this study was to perform a mapping of the EORTC-QLQ-C30 scores to EQ-5D-3L for the SIRFLOX study; a large dataset of patients with previously untreated liver-only or liver-dominant metastatic colorectal cancer (mCRC). A secondary aim was to compare the predictive validity of existing mappings from EORTC-QLQ-C30 to EQ-5D-3L conducted in other cancers.

Methods and materials: Questionnaires (completed within 529 patients) were used in a linear mixed regression to model EQ-5D-3L utility values (scored using the UK tariff) as a function of the five function scores, nine symptom scores, and the global score from the EORTC-QLQ-C30 questionnaire. A Tobit regression was also performed. The mean EQ-5D-3L values for the SIRFLOX trial were calculated and compared with predicted EQ-5D-3L values derived using published mapping algorithms.

Results: The linear mixed regression model provided a satisfactory mapping between the EORTC-QLQ-C30 and the EQ-5D-3L, whilst the Tobit model did not perform as well. When utilities from the SIRFLOX data were calculated with previously published mapping studies, three out of five studies performed well (< 10% mean difference).

Limitations: The main limitation of the study was the lack of meaningful observations post-progression (67 paired observations). For this reason, this study was unable to test whether the mapping holds by disease stage. Additionally, although the study adds to the literature of mappings to the EQ-5D-3L, it is not known how results would differ using the EQ-5D-5L.

Conclusion: This study is the first of its kind in liver-only or liver-dominant mCRC, and mCRC in general. The mapping constructed showed a good fit to the data and provides practitioners with an additional mapping between EORTC-QLQ-C30 to EQ-5D-3L using a large dataset (529 patients, 707 paired observations). The study also confirmed the generalizability of mappings published by Proskorovsky, Kontodimopoulos, and Longworth to liver-only or liver-dominant mCRC.