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Health state utilities associated with caring for an individual with cutaneous T-cell lymphoma (CTCL)
Authors:Kate Williams  Adam Gibson  Linda McNamara  Trefor Jones  Andrew J Lloyd
Institution:1. Acaster Lloyd Consulting Ltd, London, UK kate.williams@acasterlloyd.comORCID Iconhttps://orcid.org/0000-0003-4874-0334;3. Acaster Lloyd Consulting Ltd, London, UK;4. Kyowa Kirin International PLC, Marlow, UK
Abstract:Abstract

Aim

Cutaneous T-cell Lymphoma (CTCL) is a rare form of non-Hodgkin lymphoma characterized by skin lesions, which can negatively impact the quality of life of both patients and their caregivers. The Decision Support Unit (DSU) at the National Institute for Health and Care Excellence (NICE) in the UK recently outlined a rationale for the inclusion of caregiver burden in economic evaluations. This study aimed to estimate utilities for health states associated with being a caregiver for an individual with CTCL at different stages of treatment.
Keywords:Cutaneous T-cell lymphoma  caregiver  carer  utility  vignette  health technology assessment
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