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Public involvement in policy-making: the case of a Citizens’ Jury on genetic testing for common disorders
Authors:Rachel Iredale  Marcus Longley
Abstract:Abstract: Improving public involvement in policy-making is generally accepted to be a good thing, and a whole range of methods now exist in the UK that try to achieve this aim. However, few steps have been taken to involve the public directly in decisions on policy issues that will be vital in the future but are not yet on the immediate agenda of policy-makers. One attempt to do just this was made in Wales in November 1997 when a Citizens’ Jury explored future policies for genetic testing for common disorders in the NHS. This paper describes the Citizens’ Jury experiment and also includes a summary of this Jury's recommendations.
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