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Information-sharing in health and social care: Lessons from a socio-technical initiative
Authors:Tejal Shah  Louise Wilson  Nick Booth  Olly Butters  Joe McDonald  Kathryn Common
Institution:1. Level 5, Connected Health Cities North East and North Cumbria, The Core, Bath Lane, Newcastle Helix Newcastle upon Tyne, UK;2. Newcastle University, The Baddiley-Clark Building, Newcastle upon Tyne, United Kingdom
Abstract:Advances in information technology have led to new and innovative approaches in data-sharing, analysis, interpretation, and the potential for real-time responses to changes in health and social care status. However, health and social care information is not only complex but often socially and personally sensitive in ways that do not apply in other domains. This requires adoption of a tailored interdisciplinary (social, ethical, legal, technical and data science) and intersectoral (health and social care, academic and commercial institutions and citizens) approach to technology development. The authors present some important lessons to date from ongoing development of an innovative infrastructure for sharing health and social care data.
Keywords:Citizen engagement  Connected Health Cities  data-sharing  Great North Care Record  health and social care  health information exchange  information-sharing  professional engagement
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