Working and Caring for a Child with Chronic Illness: Challenges in Maintaining Employment |
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Authors: | Ajesh George Margaret H Vickers Lesley Wilkes Belinda Barton |
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Institution: | (1) School of Management, College of Business, Member, NFORCE Research Group, University of Western Sydney, Locked Bag 1797, Penrith South DC, NSW 1797, Australia;(2) School of Nursing, College of Health and Science, Member, NFORCE Research Group, University of Western Sydney, Penrith South DC, NSW 1797, Australia;(3) Children’s Hospital Education Research Institute (CHERI), The Children’s Hospital at Westmead, Locked bag 4001, Westmead, NSW 2145, Australia |
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Abstract: | This paper shares some pertinent findings from an initial, qualitative stage of a larger, national study currently being undertaken
in Australia, exploring the support needs of parents who are working full time and caring for a child with chronic illness.
The findings presented here depict the negative impact of these parents caring responsibilities on their work life and the
increased stress they experience trying to maintain full time employment. In-depth interviews revealed how these parents had
to rearrange their working hours, use up their leave entitlements, work unsatisfactory hours, sacrifice their careers and
even change their jobs in order to balance their dual roles. In addition, the findings also highlight the negative and unsupportive
attitude that employers had towards these parents. These employment conditions were extremely stressful and frustrating for
parents affecting their physical and emotional well being. |
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Keywords: | chronic illness disability employment stress caregiving |
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