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Sharing the Journey: Exploring a Social Leisure Program for Persons with Dementia and Their Spouses
Authors:Darla Fortune  Janet McKeown
Institution:1. Department of Applied Human Sciences, Concordia University, Montreal, QC, Canada;2. Department of Recreation and Leisure Studies, University of Waterloo, Waterloo, Canada
Abstract:In this article, we highlight the marginalization and exclusion persons with dementia and their spouses often face in leisure practices and spaces. We then explore aspects of a peer-led community social program aimed at inclusion. Framed in creative analytic practice, the experiences of members of the social program are shared through a composite narrative. This narrative tells the story of a couple from the point of diagnosis who seek support and education and eventually find deep social connections with others who are on a shared journey. We draw from this narrative to explore meanings of inclusion for spousal couples on the dementia journey and use a social justice lens to consider how to address experiences of exclusion in leisure practices and spaces.
Keywords:creative analytic practice  dementia  inclusion  narrative  social justice
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